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Extract:
"... In essence, the philosophy of Jehovah's Witnesses is that
blood has been designed and created by God and should therefore be used
as God intended it to be. Conflict between Jehovah's Witnesses and their
physicians represents a conflict between 2 opposing principles: respect
for patient autonomy and professional commitment to beneficence (duty
to provide optimal patient care.
The care of Jehovah's Witnesses raises 2 fundamental
ethical issues. The first is the determination of appropriate treatment
in light of ethical principles of autonomy, beneficence, and nonmaleficence;
the second is that issues of justice and resource allocation arise because
Jehovah's Witnesses refuse recommended treatment, such as blood transfusion,
but demand alternative therapies of possible greater expense, questionable
benefit, or greather harm. For example, in this case the use of erythropoietin
was not reimbursed by the usual methods because it was not within the guidelines
specified by Australian Commonwealth. Fortunately, the cost was covered
on compassionate grounds by the pharmaceutical company that manifactures
the drug.
Conflict between patients and pysicians has been dealt with
using 3 different techniques: coercion, deception, or attempts at mutual
respect for both patient and physician autonomy. An exemple of the use
of coercion can be found in the treatment of minors. Courts will generally
support blood transfusion for children of Jehovah's Witnesses parents on
the basis that parental autonomy is not unlimited and children should not
be martyrs to the parents' beliefs. A court order may be obtained and the
child would receive a transfusion against the parents' wishes. However,
it is preferable for all nonblood alternatives to be tested before coming
to this point.
An exemple of physicians who advocate the use of deception can
be found in the results of a 1991 survey of 242 members of the European
Society of intensive Care Medicine who were asked about attitudes toward
the use of blood transfusions in a hypothetical case involving the exsanguination
of a Jehovah's Witness patient. Twenty-six percent of the physicians stated
that in these circumstances they would perform transfusion in these patients
but would never inform yne patient.
Both coercion and deception can be criticized using a consequetialist
argument. This line of reasoning would suggest that if Jehovah's Witnesses
knew that they would be forced to accept blood products or tricked into
using them, then they would avoid coming to the hospital, cusing greater
morbidity in the long-term. A similar argument has been raised in relation
to involuntary human immunodeficency virus testing and disclosure. We are
unaware of any research data to support the proposition that Jehovah's
Witnesses avoid health care institutions because of concern regarding the
use of coercion and deception, anda we areunaware of children of Jehovah's
Witnesses being kept away from hospitals on this supposition.
An alternative viewpoint, such as that suggested by the rulebased
ethics, would suggest that both coercion and deception are simply wrong
because they deny patients autonomy that is an essential part of human
decision making. Indeed, any guarantee of religious freedom would seem
to imply that individuals have the right to refuse blood and blood products
for religious reasons, provided that they are competent to make such a
decision. Most Jehovah's Witnesses carry medical directive cards that explicitly
emphasize tha individual's refusal of blood transfusion under any circumstances,
and these cards are given due weight by the law. Damages have been awarded
to patients given blood products against their wishes. Jehovah's Witnesses
can legally refuse any form of treatment, even if the refusal is to the
detriment of their health.
Several groups of researchers have examined the stability of
patient's treatment choices expressed as avanced directives. These authors
have shown that only approximately 15% of patients change their preferences
for life-sustaining treatment over time, and even fewer patients change
their preference if they have been expressed in written form. Nonethless,
physicians should recognize that patients might change their minds about
blood transfusion and attempts should be made to discuss blood transfusion
privately with patients to avoid the possibility of coercion from family
of religious groups. It seems possible that patients might wish to undergo
transfusion but continue to refuse in the presence of a church elder or
familiy member. However, if a patient does change his or her mind from
a previously strongly held view, this change might be a consequence of
illness or stress impairing the patient's competence to decide.
The governing body of Jehovah's Witnesses has published an informative
and pratical guide to the medical treatment of Jehovah's Witnesses, and
it also has set up hospital liaison committees in many major cities. These
committees have 4 majio functions: (1) to help Jehovah's Witnesses find
cooperative physicians and surgeons prepared to provide bloodless surgery,
(2) to be on hand for patients anf thei families in difficult situation,
(3) to provide a liaison for consultation with medical personnel, and (4)
to research and make available to physicians and hospitals articles on
alternative nonblood therapy from the medical literature..."
Extract:
"As part of their religious belief Jehovah's Witnesses reject
the use of blood transfusions. The right of a patient to practice religion
freely may oppose the ethics of a physician who cannot watch a patient
bleed to death without intervention. In the case of adult patients the
courts have consistently supported the right to refuse blood on a religious
basis. Transfusing patients against their will can result in charges of
battery and civil monetary penalties (1).
A patient's right to self determination is not absolute. It
can be violated if there is a pressing state superior interest. A recent
case (Stamford Hospital v Vega, 236 Conn.646, 1996) involved a Jehovah's
Witness mother who bled severely after delivery. An emergencv court order
was issued to transfuse the mother against her will, in part because preserving
the family and providing a child with a mother were considered a state
superior interest. This case was eventually appealed to the Connecticut
Supreme Court, which unanimously found that the lower court erred. Ms.
Vega's common-law right of bodilv self-determination was violated.
Other state courts have also come to similar conclusions (2).
Divorce, skydiving, and auto racing could all be banned to parents if their
rights were secondary to the family unit. Proving a state superior interest
is becoming increasingly difficult. Physicians who care for Jehovah's Witnesses
must be prepared to withhold blood as a therapy no matter how necessary
this treatment becomes.
Children are a different story. The U.S. Supreme Court in Prince
v Commonwealth of Massachusetts (3) has ruled that, "Parents may
be free to become martyrs themselves, but it does not follow that they
are free, in identical circumstances, to make martyrs of their children."
The court determined that the right to practice religion freely does
not include liberty to expose children to ill health or death. This
ruling has been used in supporàng the constitutionality
of mandatory vaccination programs and forced school attendance.
Transfusions of minors against parental wishes were tested
in Jehovah 's Witnesses v Kings County (Harborview) (4). This was
a class action suit that sought to enjoin all physicians and hospitals
in the state of Washington from administering blood to plaintiffs
in the future. Ten children were included in this suit. The court ruled
that Prince v Commonwealth of Massachussetts was pertinent
and upheld the state of Washington's child neglect reg ulations that
allowed minors to be removed from their parent's care for necessary transfusions.
The law is fairly clear; lifeksaving transfusions can be given to minors
against parental wishes!
The question of who is a child is not straighdorward. It varies
not only among coutries but also from state to state. In New York state
any competent person older than 18 years of age can give medical consent,
but there are many exceptions for special circumstances (i.e., any
married person can consent, any parent can consent for a child, any pregnant
person can consent for prenatal care, any physician whose judgrnent suggests
an emergency exist and attemps to secure proper consent will
result in increased risks can consent for his or her patient) (5).
In addition, some states have adopted the concept of "mature minnor."
This doctrine originated in Illinois and states that a minor who
is mature enough to understanf the consequences of his or her
actions and exercises the judgment of an adult can reject or
consent to medical treatment. If patients are legally al lowed to give
consent for themselves, many courts support their right to refuse treatment.
An approach to dealing with Jehovah's Witness patients include
the following steps:
1 . Find out exacfly what the patient will and will
not accept. Whole blood, packed red blood cells, white blood
cells, plasma, and platelets, although strictly forbidden by
the church, may be acceptable to some patients. Albumen, fibrinogen, Rh
immunoglobulin, specific factors, transplantation, and erythropoietin
(6)are considered a "matter of conscience" and left to the individual's
discretion.
2. Be prepared to let the adult patient bleed without
transfusion. If the physician has an ethical prob lem with this, the Hospital
Information Services of the Jehovah's Witnesses in Brooklyn, NY ([718]
625-3600) may be helpfial in finding a "bloodless medicine and surgery
center" and a physician experienced in dealing with Jehovah's Witnesses.
3. Discuss with the patient and use appropriate blood
conservation techniques such as preoperative use of erythropoietin, aprotinin,
desmopressin, artificial hemoglobin, perfluorocarbon emulsions, intraoperative
hypotension, hypothermia, hemodilution, and blood salvage.
4. If the patient is a minor and cannot legally give consent,
a detailed discussion must take place with the guardians. Forcing the parents
to sign a consent allowing a transfusion puts them in a stressful situation.
Even if no transfusion is performed, just consenting to it may cause emotional
scars with social and religious stigma. A better form acknowl edges the
parent's refusal to allow transfusions while stating that if an emergencv
exist the physician will notify child welfare authorities. If there
is no time, a transfusion will be given as the law and courts require.
This type of form allows the parents the dignity of rejecting a forbidden
treatment while informing them that blood will be given if necessary
for the child's survival. Therefore this is not a consent form but
an acknowledgment of the parent's wishes and the physician's responsibility.
Courts permit transfusion against parental authority to save
a child's life; however, with proper planning and the use of blood conserving
technologies this should be a very rare occurrence. To avoid future problems
all centers performing surgery should consider how they will deal with
the Jehovah's Wltness child scheduled for elective surgery. Establishing
policies and procedures
can avoid confusion later."
REFERENCES
1. Malette v Shulman. Dominion Law Reports
(Canada) 1990;67:3221-39.
2. Fosmire v Nicoleau, 75 NY 2d 218 (1990).
3. Prince v Commonwealth of Massachusetts, 321 US 158 (1944).
4. Jehovah's Witnesses in State of Washington v King County Hospital,
278 F Supp 488 (1967).
5. NY Pulblic Health Law ch 45, article 25, §2504.
6. Jansen AR Blood transfusion and Jehova's Witnesses. Crit Care
Clin 1986; 2:91-100.